During the Coronavirus Crisis How Will Schools Provide Special Education??

With a pandemic pressing tens of thousands of the nation’s school districts into extended closures, special education administrators across the nation are wrestling with a weighty dilemma: how to provide services to students with disabilities. Federal law mandates that individuals with disabilities have an equal opportunity to participate in everything schools provide—including online learning. But a mix of factors—lack of clarity in state laws, unclear guidance from the U.S. Department of Education, and a reluctance […]

What You Should Know About Coronavirus And People With Disabilities

The COVID-19 coronavirus outbreak has everyone spooked, and hopefully, taking steps to control the outbreak and prepare to get through whatever may come of it. But one group faces additional risks and consequences, as well as anxieties: people with disabilities and or chronic illnesses. Here are five points to keep in mind about how the coronavirus outbreak affects disabled people: 1. The people most often cited as being at serious risk are largely, by some […]

NIH-funded effort may help people with intellectual disability participate in clinical studies

What The NIH Toolbox Cognitive Battery — an assessment of cognitive functioning for adults and children participating in neuroscience research —c an be adapted to people with intellectual disabilities by modifying some test components and making accommodations for the test-takers’ disabilities, according to researchers funded by the National Institutes of Health. The adaptations ensure that the battery can be used to assess the cognitive ability of people with intellectual disabilities who have a mental age of […]

Heads Up for Vets: A collaboration between AKF and the Department of Veterans Affairs’ Epilepsy Centers of Excellence

Many of our brave servicemen and women are returning home from active duty with a new war to wage: a battle to control seizures and epilepsy. They were there for us…now it’s time for us to be there for them. Returning veterans from Iraq and Afghanistan have been exposed to blasts from IEDs (improvised explosive devices), land mines, rocket-propelled grenades and suicide bombers. Blast exposure has left too many of these troops suffering with Traumatic […]

What is the Newborn Screening Clearinghouse?

Baby’s First Test houses the nation’s newborn screening clearinghouse. The clearinghouse provides current educational and family support and services information, materials, and resources about newborn screening at the local, state, and national levels and serves as the Clearinghouse for newborn screening information. The clearinghouse is supported and funded as a result of the Newborn Screening Saves Lives Act passed in 2008. Continued support for the clearinghouse is possible under the Newborn Screening Saves Lives Reauthorization […]