The COVID-19 coronavirus outbreak has everyone spooked, and hopefully, taking steps to control the outbreak and prepare to get through whatever may come of it. But one group faces additional risks and consequences, as well as anxieties: people with disabilities and or chronic illnesses. Here are five points to keep in mind about how the coronavirus outbreak affects disabled people: 1. The people most often cited as being at serious risk are largely, by some […]
Amy Wright started a coffee shop to employ people with intellectual and developmental disabilities – and joined a human rights movement. By Jessica Farthing Who She Is Like every parent, Amy Wright dreamed about her children’s futures – the sports they’d play, the colleges they’d attend, the careers they’d have. Then Beau, her third child, was born with Down syndrome, a congenital chromosomal condition that results in cognitive delays and an increased risk of certain medical […]
March 21st was selected as March 21 = 3/21 = 3 copies of the 21st chromosome. (clever!) Since it’s a global celebration of Down syndrome, numerous events are happening and many organizations are beating the donation drum. Some projects to consider spending your time and energy participating in are: 1. A Day in the Life of Down syndrome “A Day in the Life with Down syndrome“ is a fantastic smorgasbord of stories from days in […]
Many of our brave servicemen and women are returning home from active duty with a new war to wage: a battle to control seizures and epilepsy. They were there for us…now it’s time for us to be there for them. Returning veterans from Iraq and Afghanistan have been exposed to blasts from IEDs (improvised explosive devices), land mines, rocket-propelled grenades and suicide bombers. Blast exposure has left too many of these troops suffering with Traumatic […]
Baby’s First Test houses the nation’s newborn screening clearinghouse. The clearinghouse provides current educational and family support and services information, materials, and resources about newborn screening at the local, state, and national levels and serves as the Clearinghouse for newborn screening information. The clearinghouse is supported and funded as a result of the Newborn Screening Saves Lives Act passed in 2008. Continued support for the clearinghouse is possible under the Newborn Screening Saves Lives Reauthorization […]
