Sophie at The Plaza

by Amy Silverman I swear the guy smelled her coming. We had barely set foot in the lobby of The Plaza when he swept up, a slight young man in a dark suit, holding out a small bag of jelly beans. “Would you like these?” he asked Sophie in his best concierge voice. She took the bag and examined the pink and white sticker with the little girl in the iconic black jumper on it. “Where’s Eloise?” […]

Sophie’s Trip to Disneyland

by Amy Silverman Not long ago, we let Sophie play hooky from seventh grade for two days, and took her to Disneyland. I considered it an educational trip – every time we go, it seems, Sophie gets a little smarter. Some evidence: When Sophie was just shy of 5, she made her first real foray into potty training after the promise of Snow White panties in exchange for dry pull-ups. At 7, she showed compassion and […]

Why I’m Buying Brain Hats for Both My Daughters – Including the One with Down Syndrome

by Amy Silverman I will admit that I was kind of meh on the whole pussy hat thing, but as soon as a post about the brain hat popped up on Facebook I was all over Etsy, looking for someone to make me three. One for me, one for my daughter, Annabelle, and one for my other daughter, Sophie. Not long after, I heard that there was heated discussion on some other feeds about how […]

Alzheimer’s Disease In Down Syndrome

By Norberto Alvarez, MD Overview Alzheimer disease (AD) is the most common form of dementia. AD is a progressive degenerative disease of the brain, strongly associated with advanced age. However, it should not be considered a part of the normal aging process. AD is characterized by a relentless progression of symptoms associated with defined neuropathologic changes. Individuals with Down syndrome (DS), or trisomy 21, develop a clinical syndrome of dementia with clinical and neuropathologic characteristics […]

NDNRC Releases Statement On Preserving ACA Protections

The National Disability Navigator Resource Collaborative (NDNRC) recently released a statement entitled “Preserve the Protections Provided by the Affordable Care Act.” PRESERVE THE PROTECTIONS PROVIDED BY THE AFFORDABLE CARE ACT The Affordable Care Act (ACA) brought about much-needed reforms for health insurance, addressed systemic discrimination, and expanded coverage to millions of Americans who had previously been uninsured. Many of the reforms established by the ACA were a great benefit for people with disabilities, including the […]