By Mary Ellen Bogucki The start of 2019 had me reflecting on my daughter, Bree’s journey living with Autism. When I started writing these blogs a few years ago, my goal was to share our story in hopes that some of our experiences could inspire and help others. That is still my goal, that with each new experience Bree has, someone else can grow too. I am far from an expert, but I know how […]
by Kelly Kulzer-Reyes They started popping up around the Down syndrome community about a year ago, at least that’s when I first saw them. “Advocate like a Mother” t-shirts have hit the stage with gusto, and at first I loved them. Really. They are cute. I’d even like to own one. I really like the light burgundy one that debuted at the Down Syndrome Diagnosis Network (DSDN) Moms Retreat back in September. I’d have one […]
by Maria Spencer Over the years, I have had the opportunity to speak to many types of groups—many of them with an audience of primarily women and/or moms. I have had a question come up repeatedly from mothers of typically developing children that I feel is so very valuable and the subject needs to be brought to the surface. Many women have asked me, “When my child sees a child that is differenty-abled, what you […]
by Tulika Prasad The holiday season is the season of cheer and miracles and the most likely of places to find miracles is in the least likely of places. So guess where we found Santa… At the pool !!! It was the weekly swimming lesson we were at. This was an indoor pool of a hotel on a weekday and like most weeks, we were not expecting anyone in there.We walked in and saw another […]
by Jessica Ebersole I wrote the following poem after the Talent show night at our Joni and Friends family retreat during my internship at Spruce Lake. Family Retreat is a time for families with special needs to come and be refreshed from the daily grind of life with a disability. I had the opportunity to share this poem with the other two talent shows at the following weeks of retreat. Lights, Camera, Action! For a […]
