Genetic Manipulation for Individuals with Disabilities: Does CRISPR-Cas9 Provide a Magic Bullet?

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON), RICK RADER, MD, FAAIDD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “In 1972, WABC-TV in New York sent rookie reporter Geraldo Rivera to Staten Island to infiltrate the Willowbrook State School. Robert Kennedy had visited the mental institution in 1966 and declared: ‘Willowbrook State School was not fit even for animals to live […]

Telehealth and Children with Disabilities

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, LISA BARD LEVINE, MD, MBA, ANDREW G. SCHWARTZ, DDS, FACD, RICK RADER, MD, FAAIDD, DHL (HON) AND STEVEN P. PERLMAN DDS, MSCD, DHL (HON) “Persons with severe functional disabilities are the highest users of health care services. Care for the needs of this population represents a significant percentage of our national health care costs. A growing body of research has demonstrated […]

On Early Warning Systems

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF It falls upon parents, clinicians, teachers, job coaches, direct support professionals, friends, siblings and case managers to understand what constitutes an early warning system for the individuals they care about, treat and support. Several days ago, over a million residents in Hawaii were horrified to receive a cell phone warning that North Korea had launched a nuclear missile so the residents needed to seek immediate shelter. What […]

It Just Seems Normal

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH AND CHARLES D. LARSEN, DMD, MS The 1990 Americans with Disabilities (ADA) legislation set the civil rights ground rules that prohibit discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general […]

Jim Brett Honored By The AADMD

James T. Brett, known to many as Jim Brett, received the Katie Beckett Advocacy Award from the American Academy of Developmental Medicine and Dentistry (ADDMD) at the organization’s 2017 annual conference. The award is named after Katie Beckett who, from age three, had been hospitalized (for viral encephalitis) despite the protestations of her parents. President Ronald Reagan invoked her case as an example of irrational federal regulations in 1981. Eventually, a ruling that allowed children […]

On Learning How to Face Up to Things

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF At the Orange Grove Center we are investigating the merits of using robots in teaching medical students and family practice residents facial expression recognition. Some diseases, conditions and disorders just don’t sound menacing. Cramps, flus, corns, styes and cysts. Even without knowing what they actually are, you could easily shrug your shoulders from the sound of their names. But then there are others. Take Mad Cow Disease, […]

Are Refugees with Disabilities Overlooked in the General Multitude of Displaced Persons?

BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “As many as 7.7 million of the world’s 51 million people displaced by conflict have disabilities. People with disabilities are among the most hidden and neglected of all displaced people, excluded from or unable to access most aid programs because of physical and social barriers or because of negative attitudes and biases.” 1 Another report […]

Beat the Clock

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF Not being able to “Beat the Clock” for AAMD physicians, dentists, psychiatrists, behaviorists, neurologists, optometrists and other healthcare specialists means not being able to tell families that everything that can be done is being done. Earlier this morning I found the time to glance through the latest issue of the British Medical Journal. It’s somewhat ironic to say that “I found the time to glance through the […]

Travel and Tourism: The Next Step in Equality for Individuals with Special Health Needs

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH INTRODUCTION Individuals with special needs are no longer “invisible”. Step by step, they have moved out of institutions and back rooms of residences and are assimilating into everyday life. Now, they are moving into a world that many crave and enjoy – travel and tourism. Consider some of […]

On Learning That My Brain is Shrinking

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF I was quick to process and accept the news that my marinated tofu was shrinking. Doing crossword puzzles, listening to Mahler and navigating cornfield mazes was not going to curtail the shrinkage. My boat was dirty. It was the weekend; I would clean it. The plan was a “no brainer,” and I was soon to learn that the expression “no brainer” was an accurate description. Apparently it […]