Up to 45% of cerebral palsy cases can have genetic cause

The discovery of a stronger genetic cause for cerebral palsy than previously thought has led researchers to call for an end to unnecessary caesareans and arbitrary litigation against obstetric staff. In an authoritative review published in the American Journal of Obstetrics & Gynecology, members of the Australian Cerebral Palsy Research Group, based at the University of Adelaide’s Robinson Research Institute, argue that up to 45% of cerebral palsy cases can have genetic causes. This builds […]

Communication made easier for children with cerebral palsy

As presented in Medical News Today (MNT) The Biomechanics Institute of Valencia (IBV) has coordinated the ABC project (Augmented BNCI Communication), a European initiative that has developed a new brain-computer interface system to enhance communication skills of people with cerebral palsy from childhood, improving the relationship with their environment and the expression of emotions. Cerebral palsy affects 1.5 per 1,000 people in Spain, being the first cause of childhood disability. People with Dyskinetic Cerebral Palsy […]

Bridging the gap: the role of Physiatrists in caring for adults with cerebral palsy.

As featured in Cerebral Palsy Alliance is delighted to bring you this free weekly bulletin of the latest published research into cerebral palsy. Our organisation is committed to supporting cerebral palsy research worldwide – through information, education, collaboration and funding. Find out more at research.cerebralpalsy.org.au Abstract PURPOSE: Individuals with cerebral palsy (CP) experience a significant gap in care as they move from interdisciplinary pediatric programs to limited or non-existent care in the adult sector. A […]

Daily Intervention for Toddlers With Cerebral Palsy in GMFCS Level V: A Case Series.

As featured in Cerebral Palsy Alliance Abstract PURPOSE: To describe a daily physical therapy (PT) intervention program and outcomes for 2 toddlers with spastic quadriplegia, Gross Motor Function Classification System (GMFCS) level V, and to evaluate the feasibility of using a daily program in an urban children’s hospital outpatient setting. SUMMARY OF KEY POINTS: Two toddlers, GMFCS level V, received 2 hours of PT intervention based on motor learning principles 5 days a week for […]

Reliability and practicability of the straight leg raise test in children with cerebral palsy.

As featured in Cerebral Palsy Alliance Abstract AIM: Preventing restrictions to lower limb movement is part of the treatment given to children with cerebral palsy (CP). Such restrictions can be assessed using the ‘straight leg raise’ (SLR) test. This study investigated the interrater reliability and practicability of the SLR test in children with CP. METHOD: Experienced physiotherapists examined 23 children with CP (6-18y; eight females, 15 males) twice. The SLR hip range of motion (ROM) […]

Providing Dental Care For Patients With Disabilities

BY CARRIE STETLER With a shortage of special needs facilities, Rutgers School of Dental Medicine clinic serves a vulnerable population. Dennis Fitzpatrick had 17 cavities by the time he arrived at the Rutgers School of Dental Medicine’s special care center seven years ago. Fitzpatrick, 27, who suffers from cerebral palsy, had regular checkups throughout childhood, but his dental decay had progressed so far, four of his teeth had to be removed. Because of his disability, […]

Best Clinical Practice in Botulinum Toxin Treatment for Children with Cerebral Palsy.

Abstract Botulinum toxin A (BoNT-A) is considered a safe and effective therapy for children with cerebral palsy (CP), especially in the hands of experienced injectors and for the majority of children. Recently, some risks have been noted for children with Gross Motor Classification Scale (GMFCS) of IV and the risks are substantial for level V. Recommendations for treatment with BoNT-A have been published since 1993, with continuous optimisation and development of new treatment concepts. This […]

Prevention, Evaluation, And Management Of Low Bone Density – PART 1

BY PHILIP MAY MD  Prevention, Evaluation, and Management of Low Bone Mineral Density (BMD) Encountered in Adults with Developmental and Intellectual DisabilitiesClinical experience and published reports have shown that low BMD is especially common in adults with developmental disabilities, such as intellectual disability, epilepsy, autism, and cerebral palsy. Abstract For various reasons, high frequency of low bone mineral density (BMD) and increased risk for fracture are often encountered in adults with “medically complex developmental disabilities” […]

How To Organize International Group Travel For Students With Disabilities

BY ERNST VANBERGEIJK, Ph.D., M.S.W  Most non-disabled adults take for granted the ability to travel overseas for business or pleasure. However, for many teens and young adults with disabilities, the ability to travel independently without their parents is a dream. At best, they may have gone on a holiday with their families. They have never traveled to a foreign country with their friends. The benefits of traveling internationally for students with disabilities are numerous. Not […]