SARAH & EDISON

A STORY OF EMPOWERMENT Our community is getting familiar witha voice on the telephone who methodically checks in with our Ambassador families and to get updates on how their Convaid – and soon R82 – equipment is working for them. She eagerly listens to the adventures, challenges, triumphs and future plans of families living with cerebral palsy, mitochondrial disease, spinal muscular atrophy, autism and countless other conditions. Then, she shares these stories on our blog, […]

Sarah & Edison: A story of empowerment

Sarah & Edison: A story of empowerment | Convaid Blog Our community is getting familiar with a voice on the telephone who methodically checks in with our Ambassador families  and other to get updates on how their Convaid – and soon R82 – equipment is working for them. She eagerly listens to the adventures, challenges, triumphs and future plans of families living with Cerebral Palsy, Mitochondrial disease, Spinal Muscular Atrophy, Autism and countless other conditions. […]

Tips For Talking With Your Child With Special Needs About Tragedy

With recent tragedies in the news, many children, including those challenged with special needs, are exposed to trauma through the media and in conversations. The Episcopal Center for Children (ECC), a nonprofit school serving children with special needs ages 5-14 in the Washington, DC area, offers some advice on how to talk with your child about tragedy. “Children hear information from other children and from the activities around them. Your child will pick up information […]

Cerebral Palsy Interventions and Management

1. Phys Occup Ther Pediatr. 2016 Jun 9:1-15. [Epub ahead of print] Comparison of the Properties of the Handwriting Speed Test (HST) and Detailed Assessment of Speed of Handwriting (DASH): An Exploratory Study. Francis A, Wallen M, Bundy A. BACKGROUND: Handwriting speed is an important component of students’ ability to adequately express their ideas, knowledge and creativity in a timely and effective manner. AIMS: Psychometric properties of the Handwriting Speed Test (HST) and Detailed Assessment […]

Cerebral Palsy Research News

​ Hello everyone, Cerebral Palsy Alliance is delighted to bring you this free bulletin of published research into cerebral palsy, as indexed in the NCBI PubMed (Medline) and Entrez (GenBank) databases. The latest issue of CP Research News, back issues and a subscription form are available on the CP Research News page. Please click on this link to the Research Foundation of Cerebral Palsy Alliance website to view the full abstracts of the latest issue. Kind regards, Professor Nadia Badawi […]

Let’s Make Respect the New R-Word

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF BY ANN COSTELLO Reprinted with Permission from the Huffington Post INTRODUCTION There is an anonymous quote, “The ornaments of your house will be the guests who frequent it.” That serves as the perfect introduction to this month’s guest Ancora Imparo. Ann Costello is the ornament that keeps on giving. As the Executive Director of the Golisano Foundation she has been instrumental in raising the bar in the […]

New Jersey first state to enact ABLE in 2016

Trenton, NJ−Governor Chris Christie has signed ABLE legislation that will allow families the opportunity to set up tax-free 529A savings accounts for disability-related expenses. The bill received unanimous support in votes in both chambers. The legislation was sponsored by Senate President Stephen, Senator Dawn Addiego and Assemblymembers Pamela Lampitt, Louis Greenwald, Valerie Vainieri Huttle, Daniel Benson and Vincent Mazzeo. The New Jersey ABLE legislation follows upon enactment by the federal government of the Stephen Beck, Jr., […]

Pop Quiz: Cerebral Palsy

Read one mother’s personal experience with this condition and take our quiz to find out how much you know. Sandy’s Story Sandy is the parent of a child with cerebral palsy and the Board President of Gio’s Garden, a non-profit organization in Wisconsin whose mission is to nurture and strengthen families with special needs children by increasing their access to services. Before becoming a full-time mother and advocate, Sandy worked for 14 years in depression […]