You’ve Heard About it Many Times, But There Have Been Changes

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN, DDS, MPH, PHD AND STEVEN P. PERLMAN, DDS, MSCD, DHL (HON) THINGS YOU’VE HEARD 1. The prevalence of children with disabilities has continued to increase. 2.Male children have higher prevalence of disabilities than female children. 3. Children living in poverty experience the highest rates of disability. 4. Compared to children in households with advanced education, children in households with education less than high school […]

PLANNING AHEAD FOR HEALTH

GENETIC ALLIANCE BY SHARON ROMELCZYK, MPA AND JESSICA HANDY Staying healthy through the holidays and winter months can be a challenge, especially with all the travel, stress, and germs that usually come with this time of year. Staying healthy requires more than just good hygiene, healthy eating, and exercise. Did you know your family can play an important role in your preventive health? The holidays are an ideal time to talk to your family about […]

Going Solo

BY KIMBERLEE RUTAN MCCAFFERTY To the casual onlooker it was not a remarkable scene. A middle-aged mom trudging through the rain, huge beach bag slung precariously over her shoulder while clutching the hands of a ‘tween and a younger son, heading for the relative paradise of a movie theater overhang. If anyone had cared to look they would have viewed a grim determination in her eyes, a desire to reach her destination etched into the […]

A Primer On Spinal Stenosis

BY DR. JEFFREY M. DAVIS There is a need to educate our youth, and society in general, on proper spinal hygiene. I would like to address the subject of spinal stenosis, acknowledging that this indeed is a condition that affects patients most of the time that are already 50 years of age. The most important issue to discuss with all patients, but especially those not yet affected by this condition, is to educate them about […]

Sunlight Isn’t Enough

BY SUNIL J. WIMALAWANSA, MD, PHD, MBA, FACE, FRCP, FACP, FRCPATH, DSC Optimal Intakes of Vitamin D for Persons with Intellectual Developmental Disabilities: Almost Everyone Needs Vitamin D Supplements. Adequate vitamin D is essential for optimal health. In addition to the well-known effects of enhancing mineral metabolism, irrespective of the age, gender, or health status of the patient, vitamin D has beneficial effects on many other conditions, including neuromodulation, muscle strength and coordination, autoimmune disorders, […]

Epilepsy & Seizures Series • PART 4

It is very important for everyone to appreciate that the burden of care and the effects of the disease on the child necessitate adjustments in virtually all aspects of the lives of all family members. THE IMPACT OF LENNOX-GASTAUT SYNDROME ON FAMILIES Lennox-Gastaut syndrome (LGS) is a severe form of childhood epilepsy that not only has a major impact on the health-related quality of life (HRQoL) of the affected children, but on their caregivers as […]

An Endless List Of Role Models

BY H. Barry Waldman, DDS, MPH, PhD & Steven P. Perlman, DDS, MScD, DHL (Hon) These heroes are living proof of the saying, “It is better to try and fail, than to fail to try.” Hope is the feeling that what is wanted can be had or that events will turn out for the best.1 Aspiration is a strong desire, longing or ambition.1 Hope and aspirations are the twin pillars which maintain the drive of […]

Becoming An Adult

GENETIC ALLIANCE The world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. It is important to think ahead and consider the needs your child will have so that you can make sure those needs are covered without unnecessary interruption. BECOMING AN ADULT NAVIGATING THE HEALTHCARE TRANSITION PROCESS Becoming an adult comes with lots of changes: new responsibilities, […]

Ask Dr. Sheypuk Danielle Sheypuk, Ph.D.

With this column, I hope to open up a freer, franker discussion about dating, romance, and sexuality with a disability. I am so pleased to be launching my column, “Ask Dr. Sheypuk.” It is something that I have wanted to do for a long time now and something that is greatly needed in the community of people with physical disabilities and those in our family and social circles. One out of five Americans is affected by disability, […]

Nineteen Words

BY KIMBERLEE RUTAN MCCAFFERTY “Come here Justin,” I say quietly, and as always my towel-clad boy obeys, happily sliding into my lap for his post-bath cuddle. We have a routine for our bed-time ritual that we adhere to religiously, and I can tell my son enjoys the familiarity, smiling at each step in our path to bed. Tonight, however, I’ve decided to deviate just slightly from our norm, as I want to try something different […]