Movement Matters for All Girls

Ten-year-old Sadie from Birmingham, Alabama is your average fourth grader. She likes wearing pink, spending time with her friends and playing sports. Sadie also happens to have cerebral palsy and epilepsy. Unfortunately, for many girls like Sadie, the options to participate in inclusive after-school physical activity and sports programs are often limited. Girls in the United States are far less likely than boys to meet the recommended amount of daily physical activity, but the disparity […]

As Long As It’s Healthy.

by Amanda Buck I stared at the pregnancy test for a long time. I could hardly believe what I saw. In fact, I didn’t believe it, and took two more tests just to be sure. They all read “pregnant.” I’d been longing for a second child, agonizing over it for months. But we struggled with the decision, wondering if it was even right for us to try. For my husband and I, it wasn’t as […]

The purple band and the green chain #autism

by Jeannette Cripps It’s been a bit of a busy week for D, two hospital trips for me have impacted on the after school routines for her and the activities at school really step up a gear after the May half term, what with Proms week, Sports Day and end of term activities rapidly looming. In addition to the above, D has sporting opportunities coming up, these are great for team work and, in particular […]

The Blessing and The Burden

by Barbara Swoyer Several months ago, my son turned 22.  I felt grateful, lucky and blessed.  I also felt apprehensive and overwhelmed.  Like many other parents of children with special needs, it was a day that I dreaded, the day when my child would lose the entitlement of school and related services. Reaching this milestone meant that he was continuing to beat the odds against a progressive disease and the prognosis of a limited life […]

Renovating Our Home and Our Lives for Cerebral Palsy

by Jamie Sumner To renovate a home is to renovate a life. Until we began to carve out our home to make it accessible to our son with cerebral palsy, I did not know I could plan his path to freedom or how I would feel once he took it. The fact is, Charlie has outgrown this life we have built. The cerebral palsy that felt first like an anchor holding him back, now seems simply […]