BY JULIE & TONY BOMBACINO “IT TOOK US A LONG TIME TO GET HERE, BUT WE NOW SEE AJ’S FEEDING TUBE AS AN INTEGRAL TOOL IN KEEPING HIM AT HOME AND HEALTHY. ” Our son has, and gets all of his nutrition from, a feeding tube. Serving nutritious food that everyone will eat is hard enough for any family at mealtime, but caring for a child with a feeding tube presents a new set of […]
BY ADEOLA SONAIKE, PHD, MPH, CHES There are steps to assist you with selecting a local Respite provider that meets your family’s needs. Respite is your time as a caregiver for self-care, your time to respect yourself and your role as a caregiver. Respite, which originates from the Latin word ‘respectus’, literally means consideration, the act of looking back (or often) at oneself. It is also no coincidence that ‘respectus’ is the Latin origin for […]
by Doreen Arcus She would have been 100 this year. Perhaps the most influential person with intellectual and developmental disabilities in modern America, Rosemary Kennedy changed the lives of millions. And she did it through her siblings. Born at a time when families were advised to institutionalize children with disabilities, Rosemary was instead an integral part of Kennedy family life until a prefrontal lobotomy left her incapacitated at age 23. She was particularly close to […]
Whether certain supplements, taken before or during pregnancy, can reduce the risk of autism is a hotly debated question. A new large-scale study takes a fresh look. Autistic spectrum disorders (ASDs) are believed to affect 1 in 68 children in the United States, and their prevalence may be on the rise. Despite this, the exact causes and risk factors involved are still shrouded in mystery. No one knows why ASDs occur and how they can […]
BY KIMBERLEE MCCAFFERTY I STILL REMEMBER THE DAY I KNEW MY AUTISTIC SON WOULD REMAIN ON THE SEVERE END OF THE SPECTRUM. Justin was five and in the last few weeks of his pre-school program before he would transition back into district to his hometown public school. I recall going to his classroom for some type of program, the theme of which escapes me, and seeing a little blond girl he’d started with almost two […]
