Caregiver Initiative For Individuals With Down Syndrome

NDSS has partnered with the Alzheimer’s Association and National Task Group on Intellectual Disabilities and Dementia Practices to author a guidebook specifically for those caring for an individual with Down syndrome diagnosed with Alzheimer’s disease. BY SARA HART WEIR For members of the Down syndrome and disability communities, caregivers play an important role in helping members of the community lead a healthy, productive and happy lives. It is not uncommon for caregivers to put the […]

The Blessing and The Burden

by Barbara Swoyer Several months ago, my son turned 22.  I felt grateful, lucky and blessed.  I also felt apprehensive and overwhelmed.  Like many other parents of children with special needs, it was a day that I dreaded, the day when my child would lose the entitlement of school and related services. Reaching this milestone meant that he was continuing to beat the odds against a progressive disease and the prognosis of a limited life […]

Special Education: Increasing Job Opportunities for Students through Engagement in Career Technical Education

By: Dr. Christine Powell INTRODUCTION: The job market is changing and students receiving special education services, as well as special education stakeholders, need to be a part of the new educational movement. Many public school districts across the nation are realigning education curriculums in support of college and career readiness objectives for public school graduates, which include many students with Individual Education Plans (IEP). There are good reasons for linking academics with career pathways, but […]

The 10 Best Cities for Accessible Living

by Angie Bersin     Metro DC, Salt Lake City, and Tampa are leading the way in accessibility for housing, public transit, attractions and healthcare With Global Accessibility Awareness Day last month, we took a look at the most accessible cities throughout the country. The Social Security Administration estimates that one in five Americans is living with a disability, which can pose a specific set of challenges during everyday life. Although legislation exists that requires accessibility in public […]

Renovating Our Home and Our Lives for Cerebral Palsy

by Jamie Sumner To renovate a home is to renovate a life. Until we began to carve out our home to make it accessible to our son with cerebral palsy, I did not know I could plan his path to freedom or how I would feel once he took it. The fact is, Charlie has outgrown this life we have built. The cerebral palsy that felt first like an anchor holding him back, now seems simply […]

“Queen for a Day”- Book Release

  “An engrossing and compassionate collection showing motherhood in its most unrelenting form.” — Kirkus (Starred Review) Queen for a Day By Maxine Rosaler Long before there were real housewives or extreme makeovers there was the 1950s television show, Queen for a Day, where women trapped in domestic tragedy competed to win refrigerators and stainless steel silverware. This existential circus of irony is the inspiration for Maxine Rosaler’s QUEEN FOR A DAY (Delphinium Books; June […]

As You Were Saying…Help dentists aid all patients

by James T. Brett  Recently, I met a young man with Down syndrome who is in a public school just outside Boston. He spends most of his days in regular classroom settings and receives some extra help through an adult classroom aide. His junior high school experience was a reminder of how much better things are for those with intellectual and developmental disabilities, specifically more educational opportunities and better access to jobs, all leading to […]

Study Finds Facial Analysis Software Able to Identify Patients with Williams-Beuren Syndrome

A new study has shown that researchers have successfully used facial analysis technology and clinical information to successfully identify patients with Williams-Beuren syndrome, a rare condition that causes cardiovascular problems and intellectual disability. Though Williams-Beuren syndrome is a genetic condition, most case are not inherited. It affects about 1 in 7,500 to 10,000 people. People with the condition have distinctive facial features including puffiness around the eyes, a short nose with a broad tip, full […]

Understanding Your Child’s Medications

By Caitlin Hoff As a parent or caretaker of a child with special needs, it can sometimes be overwhelming to speak with doctors or healthcare professionals. In the beginning, the medical jargon can seem like a foreign language preventing you from fully understanding the situation your child is in. It can be incredibly overwhelming when you simply want to know that your child is safe and in good hands. Over time, however, this dialogue will […]

SPECIAL BIKES FOR EXTRA SPECIAL PEOPLE

by Colleen Berlingieri May is National Bike Month and there is an ever-expanding diversity of events in communities nationwide & around the world. From fashion shows to group rides, local groups are finding unique ways to celebrate their diverse bike cultures and community pride. BIKE TO WORK DAY This year Bike to Work day was Friday May 18th and according to the League of American Bicyclists, most of the largest U.S. cities will participate. And […]