You are a grandparent! Nothing can compare with the boundless love that a grandparent feels for their grandchild. No longer limited by the need to juggle work, home, school, and raising children into mature, self-reliant adulthood, the gift of grandchildren is one of life’s greatest blessings. But life doesn’t always deliver its blessings in the package we expect. The diagnosis of autism is for many a jolt into a new world; one that many have not even heard of or have knowledge of. Autism is a challenging, and sometimes mysterious, neurological disorder that occurs in 1 in 150 children. It shows itself most prominently in impairments in language, communication, behavior and social relationships. For parents, the diagnosis tears at our hearts and brings the future crashing down (at least for a time).

This is where grandparents come in. You have awaited the news of your grandchild for months, maybe years, and now the gut-wrenching truth is almost too painful. Your children are suffering. What could be worse?

I know you want to help because you are reading this. You want to find a way to ease the pain. Your adult children need you. You cannot change the autism diagnosis or somehow make it disappear. But you play a role that is critical, and you have the power to make life more manageable for your children and your grandchild. Or you can undermine their challenges and exacerbate an already fragile situation.

While having a child with autism is challenging, life will find a “new kind of normal” and will take on new meaning. There are therapies, education programs, and dietary considerations that will make life much more controllable for a person with autism.

So, you want to play a positive role in the life of your grandchild with autism? Here are a few tips that will certainly get you started on the right track:

1.       Support your children in their efforts to come to terms with and negotiate this path. Listen, affirm, and avoid offering quick judgments and/or solutions. What parents need most is to be supported and to feel affirmed that they are good parents and that they will be able to cope; they are not alone.

2.       Accept and love your grandchild for who he or she is now, not what you want them to be. This can be a tall order when you are in public and a full-blown meltdown is underway! Remember, this is not a child that is misbehaving; your grandchild needs to tell you something and is not capable of it. Loving our grandchild means interpreting his or her behavior to find the message behind it.

3.       Avoid judging or blaming anyone or anything. As humans, we too often find ourselves searching for a reason or something on which we can lay blame. In the larger picture of your grandchild’s emotional, physical, and intellectual growth, negative energy is simply wasted energy. Positive energy seeks to learn, to understand, and to support what is. Autism is a neurological disorder. Parents cannot do anything or fail to do anything that causes a child’s autism. Suggesting otherwise is cruel and utterly wrong.

4.       Support financially when possible. The education savings plan that you have begun may need to be used earlier than expected. Therapies, programs, resources, and respite care are costly, but they are the critical ingredients to making the lives of your children and their children with autism better. Listen to what your children are saying they need. Quietly reassure them that you will help in any way that you can.

5.       Learn as much as possible about autism. There are many excellent resources available. The goal should be to increase understanding of the child’s communication, social, and behavioral presentation—NOT to find a cure. Information on how children with autism see the world and how they learn will do wonders for helping you to connect with your grandchild. One of my parent’s favorites is Autistic Thinking: This is the Title by Peter Vermeulen.

6.       Offer to spend time with the children or provide the financial means to have the parents have time on their own. Don’t wait to be asked. Your child’s marriage and mental health needs as much attention as does your grandchild. It is an investment for the whole family when you provide the regular opportunity for relief.

7.       Gift certificates for movies, dinner, spa, and fitness clubs are a way to “force” a parent to take time for him or herself. Most parents will never quite get around to taking care of themselves. A homemade meal or a house cleaning can go a long way to easing stress. Take care of your child so they can care for your grandchild.

8.       Spend time with the siblings of the child with autism. Or, provide care for the child with autism so that parents and typically developing children can reconnect! So often, life at home is centered on the child with special needs that siblings can get “lost in the shuffle.” Special days away or planned activities give siblings the relief that they need from a busy household. Our other children need to know that it is healthy to take a break from caring for a person who needs a lot from us.

9.       Give your grandchild the opportunity to develop self-esteem by teaching them how to do things for themselves rather than doing it for them. It is so tempting to do things for our grandchildren with special needs. We can easily feel that “our babies” must deal with so much already that it seems cruel to say, “You can do it!” But be aware that being overly nurturing can sabotage a child’s opportunity to learn to do something and feel the sense of accomplishment and pride when they get it! No grandparent would want to chip away at a child’s self-esteem. When you guide your grandchildren through each small step and encourage their attempts (even if they are off the mark), you are building their internal sense of self and that is a gift of a lifetime.

10.     Communicate to the child with autism with short simple sentences. If you want your grandchild to do something, it is best to state it specifically rather than ask a question. For example, instead of asking, “Do you want to rake the leaves with me?” it is more likely that you will get a positive response if you say, “Come rake the leaves with me. You can help me.” People with autism are often quite literal in their thinking, and if we pose statements as questions, we may get a response that we did not intend. Avoid being loud, talking quickly, or giving multiple steps. Your grandchild will most likely not be able to process all of your verbal instructions, and they may ignore you or become very agitated.

11.      Pictures, lists, and diagrams are far more meaningful to most people with autism than words are. If your grandchild is upset or seems to lack understanding of something, it is useful to draw a picture/diagram, list the steps that will happen, or use a picture schedule. For example, a list might say: 1) Play at park 2) Snack 3) Brush teeth 4) Bedtime. OR even more specific: 1) Eat snack 2) Brush teeth 3) Read story 4) Sleep.

12.     Respect the expectations and limits that parents set up. Raising a child with autism demands a structure and routine that is essential for the child’s peace of mind. Follow dietary restrictions, bedtimes, routines (no matter how odd they seem), and communication guidelines that the parents set. People with autism may have trouble coping with changes in routine, food, sleeping arrangements, toileting, etc when they are in your home. This is not because they are behaving poorly. This IS NOT a discipline (or lack thereof) issue. It is an autism issue, and it needs to be treated as such.

Trust that you can make a deep and life changing impact on your grandchild by being the support that his/her parents need. As grandparents you may feel helpless and completely at a loss as to how to help. In reality, you do have the potential to make a huge difference whether you are physically near your children or not. Support, affirmation, and love are what will get your adult child’s family through the challenge of raising a child with autism.

  Jennifer Krumins is a full time teacher in Ontario, Canada with 18 years of experience in special education and the regular classroom. A mother of three (one of whom has autism, she is currently teaching severely challenged teen boys with autism. She is the author of Been There. Done That. Finally Getting it Right. A Guide to Educational Planning for Students with Autism: Lessons from a Mother and Teacher. For more information, visit Ms. Krumins Web site at http://www.autismaspirations.com or email her at krumins@autismaspirations.com.