EPILEPSY & SEIZURES SERIES • PART ONE BY STEVEN M. WOLF, MD & PATRICIA MCGOLDRICK, RN It is important for the epilepsy team to be well informed about the semiology of the seizures. Semiology means what the seizure looks like – how it starts, how it progresses, whether the patient is alert or not. The word “seizure” strikes fear into the heart of parents. Nothing is more terrifying than watching your loved one suffer a […]
It is very important for everyone to appreciate that the burden of care and the effects of the disease on the child necessitate adjustments in virtually all aspects of the lives of all family members. THE IMPACT OF LENNOX-GASTAUT SYNDROME ON FAMILIES Lennox-Gastaut syndrome (LGS) is a severe form of childhood epilepsy that not only has a major impact on the health-related quality of life (HRQoL) of the affected children, but on their caregivers as […]
CONVAID TREKKER GOES THE DISTANCE Oct 15, 2014 Convaid launches the lightweight, tilt-in-space Convaid Trekker wheelchair TORRANCE, Calif. (October 9, 2014) – Getting where you need to go has never been easier for families with special needs children than with the new Convaid Trekker—an all-day wheelchair from Convaid, Inc., the leading manufacturer of custom lightweight, compact-folding, adaptive-assisted wheelchairs. The Convaid Trekker meets the needs of both families and therapists, and offers the flexibility of 180-degree […]
GENETIC ALLIANCE The world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. It is important to think ahead and consider the needs your child will have so that you can make sure those needs are covered without unnecessary interruption. BECOMING AN ADULT NAVIGATING THE HEALTHCARE TRANSITION PROCESS Becoming an adult comes with lots of changes: new responsibilities, […]
With this column, I hope to open up a freer, franker discussion about dating, romance, and sexuality with a disability. I am so pleased to be launching my column, “Ask Dr. Sheypuk.” It is something that I have wanted to do for a long time now and something that is greatly needed in the community of people with physical disabilities and those in our family and social circles. One out of five Americans is affected by disability, […]
