Five Ways for Exceptional Parents to Get Involved with Rare Disease Day-Tuesday, February 28, 2017

Rare Disease Day is an international awareness campaign that takes place on the last day of February each year. It is the one day the world comes together to recognize people with rare diseases with the goal to raise awareness among the general public and decision-makers about rare diseases. Why do rare diseases need an awareness day? As it turns out, rare diseases are not so “rare.” There are approximately 7,000 rare diseases that combined […]

Rare Genomics Institute Joins The Global #givingtuesday

Rare Genomics Institute (RG) has announced today it will join #GivingTuesday, a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity worldwide. The international nonprofit organization will use the raised funds to help people affected by rare disorders – helping them connect with research, diagnoses, and treatments. “Rare diseases affect tens of millions of Americans and hundreds of millions worldwide. Advances in genomics […]