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Boston Inspired

by Ann Allen  ~The everyday kindness of the back roads, more than makes up for the agony of the headlines By Charles Kuralt Life is beautiful. Ah, such a cliché, but sometimes it feels like that when people are put in your life at the right time, in the right place, and wearing running shoes. This is the story of how my family joined the running community. On Sunday, April 14, 2013, a woman approached my […]

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Bringing the Family’s Voice to Research: How Families Contribute to Research (Part Two)

by: Lisa Diller, Seattle, Washington, Paula Drew, Edmond, Oklahoma, Marquitha Gilbert, Philadelphia, Pennsylvania, Nancy Ford, Atlanta, Georgia, tina hjorngaard, Toronto, Ontario, Canada, Kim Rayfield, Philadelphia, Pennsylvania, Barbara Taylor, Pittsburgh, Pennsylvania This is the second of a two-part article about our experiences as parent members of the On-Track Study research team. In this article we reflect on how our engagement in the research process evolved over four years and about the benefits of including parents as members […]

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Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #Interests/Talents

By Mary Ellen Bogucki When my daughter was diagnosed with Autism, I immediately started researching and learning all I could on the subject. One of the first people I learned about was Temple Grandin and I immediately became a big fan of hers. Temple provided insight into what my daughter was experiencing, long before Bree could communicate with me. There are so many things I learned from Temple, but one important lesson was to focus […]

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Did you hear the big news?!

by Brandy Pavia I have been debating on whether or not to share the awesome news that we recently received. Like, big news. I couldn’t wait to tell everyone. The truth is, the news was so exciting to me, that I wanted to stop random people to tell them…but I’m going to venture a guess that Bob, the cashier at Wawa, wouldn’t have reciprocated my enthusiasm. Thanks a lot for the buzz kill, Bob; the coffee was good […]

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How to make meetings with school staff work.

By Lynne Pearson If you are the parent of an autistic child the chances are high that you’ll have plenty of meetings with school staff. It’s always a good idea to go into meetings prepared and with an attitude that is the most likely to bring about a favourable outcome for your child, you and the school. Basically you are going to have to become a skilled negotiator. Recently  I read a famous book about […]

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Sophie’s World

by Amy Silverman  Raising a teenage daughter is hard. Raising a teenage daughter with Down syndrome is harder. It can be like bang your head against the wall screaming for mercy several times a day hard. Don’t get me wrong. I adore Sophie. At 14 and a half she is 4 feet, 5 inches of pure joy – until she’s not. And then the combination of an extra chromosome and a whole lot of hormones […]

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Dear Parent of a Newly Diagnosed Child

by Amanda Buck I know that right now your heart is breaking for your precious baby. You may have been completely blindsided or you may have known for some time that something was not right but your heart hurts just the same. This was not the future you had dreamed of, this was not even something you thought could be possible. And now that you know, life will never be the same. My daughter was […]

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What to do if your child’s therapist is not a “good” fit?

By Nicole Kolenda, M.S., CCC-SLP, P.C. As a supervisor in a graduate clinic for Speech Pathology students, the first goal we instruct our students to write is to “establish rapport”. We encourage our students to cite research to “back-up” this goal—and there is a plethora available. I always tell these budding clinicians, “How can you expect the client to work for you—and in many cases on challenging treatment goals—if they do not feel comfortable with […]

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Chapter 7: iAutism 17

By Brandy Pavia It’s been quite some time since my last update…if truth be told, it’s been months! I’ll be the first to admit that I only post when I think of something witty, otherwise I would wind up boring you with the random, mundane nonsense that pops into my head, and ain’t nobody got time for that!   I was Facebooking earlier this week, and stumbled across this amazing post, and it got me thinking about how much […]

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Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #FakingTypical (Part Two)

If you missed Part One, please visit the post from earlier this week on November 6th!  By Mary Ellen Bogucki For years, I asked to have certain accommodations in her IEP.  One of the most important was a seat close to the teacher, where she could remain focused and get help when needed.   That accommodation appeared on her very first IEP all the way to her last IEP (senior year of high school).  What I learned, […]