Hayley’s Journey

BY GAIL AND HARRY KOUJAIAN The Niemann Pick Type C (NPC) community is very fortunate and in an envious position. For being a rare disease, there are now several clinical trials in the pipeline with more on the way. Hayley’s childhood was mostly typical. She was a happy kid that participated in Karate, cheerleading, sports and met all her early milestones. Things however changed around 1st grade. She was clumsy and started to have issues […]