Tag: Genetic Alliance

Children and Youth with Special Healthcare Needs in Healthy People 2020: A Consumer Perspective

Parenting 09/22/201809/19/2018 admin

 Every decade, the U.S. Department of Health and Human Services publishes Healthy People, a document that provides science-based, 10-year national objectives for improving the health of all Americans. Healthy People 2020 includes almost 600 objectives in 42 categories, from Disability and Health to Genomics to Public Health Infrastructure. The authors of Healthy People 2020 recognized that children and youth with special healthcare needs (CYSHCN) deserve dedicated objectives to foster better health in this particularly vulnerable […]

Genetic Manipulation for Individuals with Disabilities: Does CRISPR-Cas9 Provide a Magic Bullet?

Featured Topics, Healthcare 03/28/2018 admin

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON), RICK RADER, MD, FAAIDD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “In 1972, WABC-TV in New York sent rookie reporter Geraldo Rivera to Staten Island to infiltrate the Willowbrook State School. Robert Kennedy had visited the mental institution in 1966 and declared: ‘Willowbrook State School was not fit even for animals to live […]

Diet & Nutrition: From Babies To Teens

Featured Topics, Healthcare 02/27/201802/23/2018 admin

BY JORDAN CAPIZOLA AND LILLIAN DUFFIELD The new year inspires many people to set goals for themselves, especially when it comes to diet and nutrition. People, especially parents, see it as an opportunity to reset their behaviors and develop healthier habits. Parents spend a great deal of time researching ideas and recipes for how to keep their families healthy, but sometimes researching information online can be daunting. It seems like every day there is new […]

A Holiday Cooking Survival Guide: Special Diet Edition

eParent Connect, Featured Topics 12/23/201702/21/2018 admin

BY ADRIANNA EVANS, MPH While many families are sitting down to enjoy turkey, ham, or another classic holiday dish, these options are not always available to those at the table with some newborn screening conditions. Because some newborn screening conditions impact metabolism, or how the body breaks down and uses food, some conditions require special diets. Food is a central part of the holiday season. When the weather gets cold and families huddle together for […]

Creating A Family History Tree

Healthcare 12/21/201612/22/2016 admin

Much like Kathleen did, families have the ability to trace their family health history. The tree can include everything from information on heredity, diet, work, activities and environment. GENETIC ALLIANCE BY BY CLAIRE MENA Dr. Kathleen Mimnagh, MD was doing a pediatric genetics rotation in medical school when a geneticist noticed her hand as she inserted an IV. He asked her to do a maneuver that stretched her thumb across her palm. Kathleen’s thumb, unlike […]