It is very important for everyone to appreciate that the burden of care and the effects of the disease on the child necessitate adjustments in virtually all aspects of the lives of all family members. THE IMPACT OF LENNOX-GASTAUT SYNDROME ON FAMILIES Lennox-Gastaut syndrome (LGS) is a severe form of childhood epilepsy that not only has a major impact on the health-related quality of life (HRQoL) of the affected children, but on their caregivers as […]
CONVAID TREKKER GOES THE DISTANCE Oct 15, 2014 Convaid launches the lightweight, tilt-in-space Convaid Trekker wheelchair TORRANCE, Calif. (October 9, 2014) – Getting where you need to go has never been easier for families with special needs children than with the new Convaid Trekker—an all-day wheelchair from Convaid, Inc., the leading manufacturer of custom lightweight, compact-folding, adaptive-assisted wheelchairs. The Convaid Trekker meets the needs of both families and therapists, and offers the flexibility of 180-degree […]
CILs are consumer-driven, private, nonprofit organizations that advocate for people with disabilities and offer services to people with disabilities as peers. Type in “disability awareness” on a search engine and one uncovers a wealth of programs and activities offered by schools, agencies and consultants to bring about a greater understanding of living with a disability. Many programs are for children, while others are aimed at employers or co-workers. Still other programs cover “disability etiquette and […]
BY H. Barry Waldman, DDS, MPH, PhD & Steven P. Perlman, DDS, MScD, DHL (Hon) These heroes are living proof of the saying, “It is better to try and fail, than to fail to try.” Hope is the feeling that what is wanted can be had or that events will turn out for the best.1 Aspiration is a strong desire, longing or ambition.1 Hope and aspirations are the twin pillars which maintain the drive of […]
GENETIC ALLIANCE The world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. It is important to think ahead and consider the needs your child will have so that you can make sure those needs are covered without unnecessary interruption. BECOMING AN ADULT NAVIGATING THE HEALTHCARE TRANSITION PROCESS Becoming an adult comes with lots of changes: new responsibilities, […]
