Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #Overcoming — Part 2

By Mary Ellen Bogucki  I never thought my daughter, Kailey, would struggle in school. She was such a determined little girl who problem-solved at an early age. She was a little go getter and seemed to be so advanced for her age. Then it was time for kindergarten and she wasn’t learning her letters or numbers and didn’t want to learn to write her name. She was a great little student, making lots of friends, […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #Overcoming — Part 1

By Mary Ellen Bogucki  In 2003, our family received two diagnoses, just weeks a part. The first was for our youngest daughter, Bree (then age 5), the diagnosis was an Autism Spectrum Disorder. The second diagnosis was for my middle daughter, Kailey (then age 8) and it was ADHD. Neither diagnosis was a surprise, because our girls had been struggling for years and we were working not only with the school district, but many different […]

An Envelope Full of Kindness

by Tulika Prasad It was a routine end of the school and I was was checking my son’s backpack as I did everyday. There, in a corner of the back was a small white unassuming envelope that almost went unnoticed. I pulled it out not thinking much. It was a little crumpled and seemed like it had been waiting for it to be opened for a while. The front of the envelope read: from :Ricky […]

Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #Reflection

By Mary Ellen Bogucki The start of 2019 had me reflecting on my daughter, Bree’s journey living with Autism. When I started writing these blogs a few years ago, my goal was to share our story in hopes that some of our experiences could inspire and help others. That is still my goal, that with each new experience Bree has, someone else can grow too. I am far from an expert, but I know how […]

Advocate like a Mother

by Kelly Kulzer-Reyes They started popping up around the Down syndrome community about a year ago, at least that’s when I first saw them. “Advocate like a Mother” t-shirts have hit the stage with gusto, and at first I loved them. Really. They are cute. I’d even like to own one. I really like the light burgundy one that debuted at the Down Syndrome Diagnosis Network (DSDN) Moms Retreat back in September. I’d have one […]