Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #Overcoming — Part 2

By Mary Ellen Bogucki  I never thought my daughter, Kailey, would struggle in school. She was such a determined little girl who problem-solved at an early age. She was a little go getter and seemed to be so advanced for her age. Then it was time for kindergarten and she wasn’t learning her letters or numbers and didn’t want to learn to write her name. She was a great little student, making lots of friends, […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #Overcoming — Part 1

By Mary Ellen Bogucki  In 2003, our family received two diagnoses, just weeks a part. The first was for our youngest daughter, Bree (then age 5), the diagnosis was an Autism Spectrum Disorder. The second diagnosis was for my middle daughter, Kailey (then age 8) and it was ADHD. Neither diagnosis was a surprise, because our girls had been struggling for years and we were working not only with the school district, but many different […]

An Envelope Full of Kindness

by Tulika Prasad It was a routine end of the school and I was was checking my son’s backpack as I did everyday. There, in a corner of the back was a small white unassuming envelope that almost went unnoticed. I pulled it out not thinking much. It was a little crumpled and seemed like it had been waiting for it to be opened for a while. The front of the envelope read: from :Ricky […]

About Autism, A Little Boy, and Nobody’s Fault

by Tulika Prasad We were at an indoor water park a few weeks back and the pool we were in had a basketball hoop that a few other kids were playing at. My son was happy just watching the game and would keep jumping in , all excited . That’s when one of the kids asked him if he wanted to join them. He was kind and genuine. My son was incognizant. The kid waited […]

What Hope Looks Like

by Maria Spencer In my daughter Olivia’s sixteen years, I have seen many hope-filled days. I have seen her improve in areas at school that we never dreamed of, have seen her run track and always, always defy the odds that were given to her as a baby. But in the past several months, I have seen her do something that is beyond my wildest dreams or imaginations. Just when I think she has reached a […]

Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #Reflection

By Mary Ellen Bogucki The start of 2019 had me reflecting on my daughter, Bree’s journey living with Autism. When I started writing these blogs a few years ago, my goal was to share our story in hopes that some of our experiences could inspire and help others. That is still my goal, that with each new experience Bree has, someone else can grow too. I am far from an expert, but I know how […]

Advocate like a Mother

by Kelly Kulzer-Reyes They started popping up around the Down syndrome community about a year ago, at least that’s when I first saw them. “Advocate like a Mother” t-shirts have hit the stage with gusto, and at first I loved them. Really. They are cute. I’d even like to own one. I really like the light burgundy one that debuted at the Down Syndrome Diagnosis Network (DSDN) Moms Retreat back in September. I’d have one […]

Teach Them to Care

by Maria Spencer Over the years, I have had the opportunity to speak to many types of groups—many of them with an audience of primarily women and/or moms. I have had a question come up repeatedly from mothers of typically developing children that I feel is so very valuable and the subject needs to be brought to the surface. Many women have asked me, “When my child sees a child that is differenty-abled, what you […]

We Found Santa at the Pool!

by Tulika Prasad The holiday season is the season of cheer and miracles and the most likely of places to find miracles is in the least likely of places. So guess where we found Santa… At the pool !!! It was the weekly swimming lesson we were at. This was an indoor pool of a hotel on a weekday and like most weeks, we were not expecting anyone in there.We walked in and saw another […]

Lights, Camera, Action!

by Jessica Ebersole I wrote the following poem after the Talent show night at our Joni and Friends family retreat during my internship at Spruce Lake. Family Retreat is a time for families with special needs to come and be refreshed from the daily grind of life with a disability. I had the opportunity to share this poem with the other two talent shows at the following weeks of retreat. Lights, Camera, Action! For a […]