Rare Disease Caregiving Study

To study the impact of rare disease on unpaid friends and family members who provide care (known as “family caregivers”), the National Alliance for Caregiving and Global Genes, are launching a “first-of-its-kind” national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases. The survey will be open from Wednesday, September 13 through […]

NJ Teen Awarded $36K For Launching Comic Book Series For Siblings Of Individuals With Special Needs

Last August, Julie Averbach from Short Hills, NJ was awarded $36,000 by the Helen Diller Family Foundation in recognition of her commitment to tikkun olam (repair the world). At a luncheon at San Francisco’s Four Seasons Hotel Julie, along with 14 other young leaders from across the nation, received the national 2017 Diller Teen Tikkun Olam Award (www.dillerteenawards.org), a prestigious honor given to youth leaders who have demonstrated exceptional leadership, community service and action. Julie […]

September is Newborn Screening Awareness Month

September is Newborn Screening Awareness Month Screening infants for hearing loss is extremely important for future development  RESTON, Va., Sept. 13, 2017—The American Academy of Audiology advocates education of the public regarding the importance of hearing screening for infants. Approximately 97% of hospitals and birthing clinics screen infants. A bipartisan bill (S. 652), Early Hearing Detection and Intervention Act has just passed the Senate. This bill reauthorizes funding for important EHDI programs over the next […]

New USDA Regulation Confirms ABLE Funds Protection

On January 6th the Food and Nutrition Service (FNS), a federal agency under the United States Department of Agriculture (USDA), published a final rule regarding various aspects related to, among other things, eligibility for Supplemental Nutrition Assistance Program (SNAP) benefits. As many know, SNAP offers nutrition assistance to millions of eligible, low-income individuals and families (including those with disabilities) and provides economic benefits to communities.  Additionally, SNAP is the largest program in the domestic hunger […]

NDRN Sends Comments to Feds on timely Home and Community Based Services

Centers for Medicare and Medicaid Services U.S. Department of Health and Human Services Attention: CMS–2404–NC P.O. Box 8013 Baltimore, MD 21244–8013 Delivered Electronically  Ref: 42 CFR Part 440: [CMS–2404–NC] RIN 0938–ZB33. RFI: Federal Government Interventions to Ensure the Provision of Timely and Quality Home and Community Based Services. The National Disability Rights Network (NDRN) appreciates the opportunity to respond to the Centers for Medicare and Medicaid Services (CMS) Request for Information (RFI) on federal government […]

ABLE National Resource Center Publishes Report Chronicling Accomplishments

As we embark on the 2nd anniversary of the signing on the Stephen Beck Jr. Achieving a Better Life Experience (ABLE) Act, the ABLE National Resource Center (ANRC) would like to take a moment to reflect on the tremendous amount of work that has been dedicated to the implementation of this transformative law and of the contributions made by the Center and its supporters. With the aim of providing individuals with disabilities, their families and […]

Effect of Medicaid Expansion on Workforce Participation for People With Disabilities

BY Jean P. Hall, PhD, Adele Shartzer, PhD, Noelle K. Kurth, MS, and Kathleen C. Thomas, PhD Objectives.To use data from the Health Reform Monitoring Survey(HRMS)to examine differences in employment among community-living, working-age adults (aged 18–64 years) with disabilities who live in Medicaid expansion states and nonexpansion states. Methods. Analyses used difference-in-differences to compare trends in pooled, cross-sectional estimates of employment by state expansion status for 2740 HRMS respondents reporting a disability, adjusting for individual […]

US Labor Department announces new online tool to help workers, employers understand medical- and disability-related leave

WASHINGTON – The U.S. Department of Labor today unveiled a new online tool to help employees and employers understand the medical and disability leave to which employees may be entitled to manage medical conditions and disabilities. The launch of the Medical-and Disability-Related Leave Advisor culminates National Disability Employment Awareness Month, a national campaign held in October to mark the contributions of America’s workers with disabilities and to educate employers about how to effectively recruit and […]

U.S. Department of Education Releases Guidance on Civil Rights of Students with Disabilities

The U.S. Department of Education released three new sets of guidance today to assist the public in understanding how the Department interprets and enforces federal civil rights laws protecting the rights of students with disabilities. These guidance documents clarify the rights of students with disabilities and the responsibilities of educational institutions in ensuring that all students have the opportunity to learn. The guidance released today includes a parent and educator resource guide; a Dear Colleague letter (DCL) and question and answer document on the use of restraint […]

Pain Free Blood Glucose Monitoring Device Developed

Western New England University professors Dr. Ronny Priefer and Dr. Michael Rust have developed a handheld breathalyzer that allows individuals to painlessly check their blood glucose levels. Instead of using the traditional finger-stick testing, patients blow into a breathalyzer to detect the acetone levels in their breath, which have been linked to high blood glucose. With this information, patients can determine if they need to take insulin. Priefer and Rust presented their research at the […]