Life with Down syndrome is still worth living

Down syndrome screening isn’t about public health. It’s about eliminating a group of people By Renate Lindeman June 16, 2015 Renate Lindeman is the spokesperson for Dutch parent group Downpride. She lives in the Netherlands. Upon delivering my first child 11 years ago, I heard the words “Down syndrome,” and my world collapsed. Visions of children sitting passively in a corner watching life go by, not participating, kept me awake those first nights as a […]

Study Finds Having a Child with Down Syndrome a Positive Experience

Only younger siblings struggled in some cases, which researchers said wasn’t surprising. MONDAY, March 21, 2016 (HealthDay News) — Families of children with Down syndrome face challenges, but by and large their experiences are positive ones, a new study suggests. Researchers found that in 87 percent of families they surveyed, everyone — parents and siblings — said they loved their family member who had Down syndrome, and almost as many families said they felt pride […]

Growth Charts for Children with Down Syndrome in the United States

A CDC-funded study in Pediatrics provides new growth charts for children with Down syndrome in the United States. Healthcare providers can use these new charts to monitor growth among children with Down syndrome and assess how well a child with Down syndrome is growing when compared to peers with Down syndrome. Read the abstract of the paper here. What did we already know? Children with Down syndrome have a different growth pattern compared to children […]

New Jersey first state to enact ABLE in 2016

Trenton, NJ−Governor Chris Christie has signed ABLE legislation that will allow families the opportunity to set up tax-free 529A savings accounts for disability-related expenses. The bill received unanimous support in votes in both chambers. The legislation was sponsored by Senate President Stephen, Senator Dawn Addiego and Assemblymembers Pamela Lampitt, Louis Greenwald, Valerie Vainieri Huttle, Daniel Benson and Vincent Mazzeo. The New Jersey ABLE legislation follows upon enactment by the federal government of the Stephen Beck, Jr., […]

Key Findings: Gastroschisis – a Serious Birth Defect – Continues to Increase

New CDC research shows that the occurrence of gastroschisis, a birth defect where a baby’s intestines stick outside of the body through a hole beside the belly button, continues to increase over time. Importantly, the causes for the continued increase in the number of babies born with gastroschisis are unknown, and public health research is urgently needed to uncover more clues. You can read the article at or read more below for a summary […]

Down’s Syndrome People Risk ‘Extinction’ At The Hands Of Science, Fear and Ignorance

SOURCE: The Telegraph By Tim Stanley Society doesn’t do enough to show women carrying a baby with Down’s that the life inside them is precious, intelligent and capable of so much A painting hangs in the Metropolitan Museum of Art, New York called The Adoration of the Christ Child. Created in the 16th century by a Flemish artist, what stands out in this sublime presentation of the Nativity is the detail of the characters standing […]

The Medically Underserved Population (MUP)

BY EMILY JOHNSON If you look at the pictures of my brother and me on my first day of kindergarten, and my first day of medical school, they look remarkably similar. Despite the 16 years separating the two, our hairstyles have only changed minimally. However, one of the biggest similarities of these two occasions was my personal naivety. In both cases, I was somewhat unprepared for the way my brother and others with intellectual disabilities […]

New link between Down syndrome, Alzheimer’s revealed

Study Led by Researchers at Lewis Katz School of Medicine Reveals New Link Between Down Syndrome and Alzheimer’s Disease, Raising Hope for New Treatments Individuals with Down syndrome who survive into adulthood face the additional challenge of early-onset dementia, in which toxic amyloid plaques build up in the brain. The condition is strikingly similar to Alzheimer’s disease, and as new work led by researchers at the Lewis Katz School of Medicine at Temple University (LKSOM) […]

50% Of Children With Special Needs Are Bullied At School

B A C K – T O – S C H O O L  S U R V E Y Parents that were recently surveyed by AngelSense revealed the severity of the situation for children with special needs: 50% of parents reported that their special needs child has been bullied at least once on the way to school or at school, and almost 80% of parents of children with special needs, such as autism spectrum […]

Mainstreaming the Education of Children with Disabilities: The Teacher’s Perspective

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON), AND MISHA GAREY, DDS “Inclusive education is a worldwide phenomenon widely advocated in the recent past. It is a philosophy as well as a principle and/or practice that is based on human rights and social justice. It advocates that children with special needs have to be educated along their normal peers in the regular […]