Daily Intervention for Toddlers With Cerebral Palsy in GMFCS Level V: A Case Series.

As featured in Cerebral Palsy Alliance Abstract PURPOSE: To describe a daily physical therapy (PT) intervention program and outcomes for 2 toddlers with spastic quadriplegia, Gross Motor Function Classification System (GMFCS) level V, and to evaluate the feasibility of using a daily program in an urban children’s hospital outpatient setting. SUMMARY OF KEY POINTS: Two toddlers, GMFCS level V, received 2 hours of PT intervention based on motor learning principles 5 days a week for […]

Reliability and practicability of the straight leg raise test in children with cerebral palsy.

As featured in Cerebral Palsy Alliance Abstract AIM: Preventing restrictions to lower limb movement is part of the treatment given to children with cerebral palsy (CP). Such restrictions can be assessed using the ‘straight leg raise’ (SLR) test. This study investigated the interrater reliability and practicability of the SLR test in children with CP. METHOD: Experienced physiotherapists examined 23 children with CP (6-18y; eight females, 15 males) twice. The SLR hip range of motion (ROM) […]

Providing Dental Care For Patients With Disabilities

BY CARRIE STETLER With a shortage of special needs facilities, Rutgers School of Dental Medicine clinic serves a vulnerable population. Dennis Fitzpatrick had 17 cavities by the time he arrived at the Rutgers School of Dental Medicine’s special care center seven years ago. Fitzpatrick, 27, who suffers from cerebral palsy, had regular checkups throughout childhood, but his dental decay had progressed so far, four of his teeth had to be removed. Because of his disability, […]

Best Clinical Practice in Botulinum Toxin Treatment for Children with Cerebral Palsy.

Abstract Botulinum toxin A (BoNT-A) is considered a safe and effective therapy for children with cerebral palsy (CP), especially in the hands of experienced injectors and for the majority of children. Recently, some risks have been noted for children with Gross Motor Classification Scale (GMFCS) of IV and the risks are substantial for level V. Recommendations for treatment with BoNT-A have been published since 1993, with continuous optimisation and development of new treatment concepts. This […]

Prevention, Evaluation, And Management Of Low Bone Density – PART 1

BY PHILIP MAY MD  Prevention, Evaluation, and Management of Low Bone Mineral Density (BMD) Encountered in Adults with Developmental and Intellectual DisabilitiesClinical experience and published reports have shown that low BMD is especially common in adults with developmental disabilities, such as intellectual disability, epilepsy, autism, and cerebral palsy. Abstract For various reasons, high frequency of low bone mineral density (BMD) and increased risk for fracture are often encountered in adults with “medically complex developmental disabilities” […]

How To Organize International Group Travel For Students With Disabilities

BY ERNST VANBERGEIJK, Ph.D., M.S.W  Most non-disabled adults take for granted the ability to travel overseas for business or pleasure. However, for many teens and young adults with disabilities, the ability to travel independently without their parents is a dream. At best, they may have gone on a holiday with their families. They have never traveled to a foreign country with their friends. The benefits of traveling internationally for students with disabilities are numerous. Not […]

Alternatives To Out-Of-Home Placement For Families

BY LAUREN AGORATUS, M.A. Families and individuals need to visualize what they want as goals to see if the program is a good “fit” and if they can picture the person in that environment. The American Academy of Pediatrics (AAP) just published “Out of Home Placements for Children and Adolescents with Disabilities.” This document provides compassionate but incomplete guidance on a difficult decision for families, and presents out-of-home placement as a last resort. Some placements […]

Going Solo

BY KIMBERLEE RUTAN MCCAFFERTY To the casual onlooker it was not a remarkable scene. A middle-aged mom trudging through the rain, huge beach bag slung precariously over her shoulder while clutching the hands of a ‘tween and a younger son, heading for the relative paradise of a movie theater overhang. If anyone had cared to look they would have viewed a grim determination in her eyes, a desire to reach her destination etched into the […]

Youth Participation In Transition Planning

BY VALERIE LEITER In 2004, Congress added new transition requirements to the Individuals with Disabilities Education Act (IDEA), striving to improve youth outcomes after high school. These new requirements say that the Individual Education Program (IEP) must include “appropriate measurable postsecondary goals” and the “transition services… needed to assist the child in reaching those goals.” They also give students the right to participate in planning once their IEP meetings focus on transition from school. It […]