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In Someone Else’s Shoes

PUZZLES & CAMO BY SHELLY HUHTANEN She knew these parents care for their children each and every day, knowing the difficulties they face. These parents may struggle each day to do something as simple as transporting them to school. I’ve always wondered if there would be more empathy in the world for people with disabilities, or for families who are raising children with disabilities, if those not affected could live in our shoes for a […]

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How A Child Developmental Passport Can Help Families

BY DEEPA SRINIVASAVARADAN Developmental Passports can be used by parents to track the health, wellness, and development of their child. These are available in both English and Spanish for families. A STATE EXAMPLE The Child Developmental Passport in NJ was developed in collaboration with the State Ambassador of the Center for Disease Control’s (CDC’s) Learn the Signs, Act Early Program and the Help Me Grow and Early Childhood Comprehensive Systems Initiative of the NJ Department […]

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Finding The Right New Team

BY ALLEN FRIEDLAND, MD, FACP, FAAP I urge you to ask your current team for advice on where to look locally/regionally. It is not easy to do a web search to find these practices (wouldn’t that be nice). As a physician that has an interest in the care of young adults with special health care needs, I hear from patients and families all the time about how hard it is to find a physician that […]

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You Are Your Child’s Best Ally

Remember, it takes a village to raise a child and in our case, it wasn’t only a village, it was an entire Best Buddies community! BY PEG GRAFWALLNER On Thursday, September 15, 2016, I had the privilege of speaking at the Best Buddies breakfast at the Pfister Hotel. This presentation gave the audience the opportunity to learn more about this important organization and also learn more about my daughter, Ani, and her capabilities and successes. […]