BY BETH H. VOGEL, MS, CGC A Survey of Parents in the New York-Mid-Atlantic Region NYMAC conducted a consumer survey to identify gaps in coverage and to assess care coordination. The results of the survey will be used to create tools for advocacy. The New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services (NYMAC) is a Regional Genetics Collaborative funded by the Health Resources and Services Administration. NYMAC serves individuals with genetic conditions living in […]
BY JENNIFER WOODWORTH, PSY.D Creating boundaries when they are young and allowing more freedom as they get older, produces children who are savvy about how and why they are spending their money. Starting in kindergarten, and even before, children are learning about money; what coins and dollar bills look like, how much they are worth, and the symbols that differentiate them from each other. However, it is more likely that children are watching their parents […]
BY LAUREN AGORATUS INTRODUCTION I wrote this manual to help other families of individuals with special needs and the professionals who work with them. My daughter now has five life-threatening conditions, and autism just to keep things interesting. We have been through everything from early intervention to currently going through transition to adult care. I hope this helps you on your journey. Part III follows; to review Parts I and II, see the September and […]
“The difference between the almost right word and the right word is really a large matter – it’s the difference between the lightning bug and the lightning.” Mark Twain wrote that in a letter, and while it referenced the writing life, the same analogy could be applied to financial strategies for persons with special needs. What’s the difference? More than ten years ago, Massachusetts Mutual Life Insurance Company (MassMutual) recognized that, in regards to the […]
BY SARAH ROTH, MFA Ginahelp.org provides an introduction to GINA and its protections in health insurance and employment. Knowledge can be both frightening and empowering, and knowledge of your child’s predisposition for a genetic condition is no exception. Moreover, the decision to pursue genetic testing can provide as many questions as answers. From a small sample of skin, saliva or blood, your family is given a set of signs—pluses, minuses, numbers and letters—that foretell the […]
