PART II of a SERIES INTERVIEW OF STEPHEN L. DEFELICE, M.D., BY JOSEPH M. VALENZANO JR. In Dr. DeFelice’s journey with carnitine, he faced every barrier in our medical discovery system. He believes the Doctornaut Act is the only practical remedy and route to achievable solutions. “My experience with carnitine and our Barrier System would require a thick book that no one would read,” he said. “A single tragic story concerning cancer clearly demonstrates this. […]
BY LAUREN AGORATUS, M.A. The Affordable Care Act (ACA) affects children with special needs and disabilities in many ways. This article provides an overview of some ACA-related topics relevant to children and youth with special health care needs (CYSHCN) and their families. It is based on a series of posts in the ACA blog published by the National Center for Family Professional Partnerships (NCFPP). The NCFPP is a project of Family Voices, operated through a […]
GENETIC ALLIANCE BY BY BLAINE ELIAS “Genome-engineered humans are not with us yet. But this is no longer science fiction,” says Jennifer Doudna, speaking at a London TED Talk in September. Doudna, a biologist and science researcher at the University of California, Berkeley, addresses an international audience in order to discuss her latest discovery.“Genome-engineered animals and plants are happening right now,” Doudna continues. “And this puts in front of all of us a huge responsibility: […]
by Lindsey Tanner Parents of newborns with rare genetic conditions used to hear the grim words that the severe birth defects were “incompatible with life.” Support groups and social media showing the exceptions have changed the landscape. So has mounting research suggesting that not all such babies are doomed to die. The latest study focuses on trisomy 13 and trisomy 18—genetic conditions that typically cause mental impairment, facial and organ abnormalities, breathing problems, heart defects […]
by Amabelle Equio The Kansas State University (KSU) Engineering team recently announced their new research-based project utilizing the latest technology to design a round-the-clock sensor to help track the wellness of children with special needs. The goal of their study is to measure the quality of sleep and daytime well-being, at a low cost by developing a signal processing algorithm, that is noninvasive, Prof. Bala Natarajan, from KSU the electrical and engineering, said. The projects, […]
