Financial Literacy for Everyone: Florida’s My Money Program

Individuals with disabilities make up approximately 12.9 percent of Florida’s population; 9.9 percent of working aged individuals in the United States (18-64 years old) have a disability, according to the U.S. Census Bureau. Yet, individuals with disabilities experience significant disparities in employment and participation in the workforce, per the American Institutes for Research. In Florida, 18.2 percent of individuals with disabilities are employed, while those without a disability are employed at a rate of 60.5 […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Transitions: Moving from Pediatric Care to Adult Care can be Tricky. Here are 8 Questions to Ask Your Doctor to Facilitate the Process.

by Kritz, Fran Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay “with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors who treat adults, says Bruce H. Cohen, MD, FAAN, professor of pediatrics […]

Dear Future Daughter-In-Law

BY KIMBERLEE MCCAFFERTY “You may also be worried about your kids being autistic, and I think we should talk about this too. They’re still figuring out the causes (I’m hoping if I make it to one hundred they’ll have it figured out, it’s a goal,) but genetics definitely plays a part.” Dear Future Daughter-in-law, For the record, I’m planning on still being around when my son marries you, but I was pretty damn old when […]

Bringing the Family’s Voice to Research: Parents as Members of the Research Team (Part One)

by Lisa Diller, Seattle, Washington; Paula Drew, Edmond, Oklahoma; Marquitha Gilbert, Philadelphia, Pennsylvania; Nancy Ford, Atlanta, Georgia; tina hjorngaard, Toronto, Ontario, Canada; Kim Rayfield, Philadelphia, Pennsylvania; Barbara Taylor, Pittsburgh, Pennsylvania   “Nothing About Us Without Us!” is a slogan used to communicate the idea that no policy should be decided by any representative without the full and direct participation of members of the group(s) affected by that policy.” It has been embraced by the disability community for […]