Fetal surgery benefits to repair spina bifida persist through school age

Children as young as 6 years old who underwent fetal surgery to repair a common birth defect of the spine are more likely to walk independently and have fewer follow-up surgeries, compared to those who had traditional corrective surgery after birth, according to researchers funded by the National Institutes of Health. The study appears in Pediatrics. The procedure corrects myelomeningocele, the most serious form of spina bifida, a condition in which the spinal column fails […]

Living with Spina Bifida: Young Adults

The transition from adolescence to adulthood can be a time of growth and success, as well as difficulty. For people with spina bifida, it is especially important to begin planning for transitions in childhood so they are able to lead independent lives as adults. Young adults affected by spina bifida can face challenges, such as: Learning to take care of their own health needs. Working. Going to school. Volunteering. Finding and using transportation. Living outside […]

Study helps clinicians and families anticipate surgeries for individuals with spina bifida

In a study appearing in PediatricsExternal, CDC scientists and other researchers describe the lifetime occurrence of common surgeries and four key health outcomes in individuals with spina bifida. This information can help clinicians and parents know what surgeries and common health issues may be experienced by individuals with spina bifida as they age. In this study, researchers found that Individuals will all types of spina bifida commonly underwent brain and spine surgeries. More than five […]

Living with Spina Bifida: School-Aged Children

Starting school brings children into regular contact with the larger world. Friendships become important and physical, social, and mental skills develop rapidly during this time. Children who feel good about themselves are more able to resist negative peer pressure and make better choices. This is an important time for children to become more responsible and independent. This is also a good time to start exploring potential lifetime interests such as hobbies, music, or sports. Developing […]

Living with Spina Bifida: Toddlers and Preschoolers

Life with a toddler or preschooler is both fun and challenging. These young children experience huge mental, social, and emotional changes. They have a lot of energy and enthusiasm for exploring and learning about their world and becoming independent. Developing independence can be especially challenging for children with spina bifida. Parents should start helping their child develop independence early in childhood. Cdc-mediaLow Resolution Video Encouraging Independence For toddlers and preschoolers with spina bifida, there are […]